• Updates
  • OUR BEST DAY YET!

        So this is where I get all Patch Adams on you…. We checked back into the Plaza (Alberta Childrens Hospital) on Thursday Sept 29. In style of course (via ambulance as Lewiston was puking, choking and turning blue) We got in and he seemed settled so of course I was pushing to get […]

  • Updates
  • ITS BEEN A MONTH

      It has been a month…. (Before you get all judgy – i am tired, i don’t like editing and so yes there are several mistakes in here – get over it….the world has bigger problems than which “there” I used.) This last month has been a whirlwind. When we walked into the Childrens Hospital […]

  • Lewiston
  • LEWISTON JAMES

    Our fears were recently confirmed during our meeting with the Pediatric Neurologist at AB Children’s Hospital. In Winnipeg, we feared this diagnosis but were led to believe it wasn’t even a possibility. Today the scary diagnosis of SMA – Spinal Muscular Atrophy Type 1 was confirmed. So here is the crazy thing to this all. Most […]