The night was unreal. It was like out of dream for me and I believe the pictures say it all. We danced, we laughed and we all shed a few tears. The best part was honouring our little lion.
The last thing I wanted to do was sit at home curled up in the fetal position bawling my eyes out because my son had passed away from some horrible genetic disease that had no cure. I didn’t want to be depressed, I wanted to celebrate Lewiston. He changed my life and so many others. People are listening to his story, and want to contribute to finding a cure for SMA. So why not use his story to raise funds, inspire others and touch some lives for the better.
7 weeks earlier I had gathered a bunch of my close friends and asked for help. Help to pull off a first birthday for my baby boy who passed away 4 months earlier. I knew I couldn’t do it myself, so I sent a text out Monday morning and Monday night each one showed up to plan, take on a role and commit to making his birthday not a milestone we dread, but something that would bring joy and spread his love.
The best part of the event was the day after when my husband looked me in the eyes and said that this was the most joy he had felt since July and that he would never fear Lewiston’s birthday as it was now an epic event that had special, special meaning.
The best part of the night was when “Can’t stop the feeling” came on and the confetti cannons exploded onto the crowd.
A huge shout out everyone for buying a ticket, for the generous donations, the countless texts and messages and the videos of families around the world having a dance party to “Can’t stop the feeling.” Huge love to our sponsors for making this event happen. Without them none of this would have been possible. We were able to raise over $42K for the Alberta Children’s Hospital and SMA Research. A night to remember and not a day to dread, but one to always celebrate Lewiston.